Bucketsofluke

I’ve become an expert on rollin with the punches. Shit happens big and small and I move on and don’t dwell on it. A lot of people that know me would say I sometimes think more like a man. If that irritates you, then well, have a nice day. It is who I am. I…

Busy Livin’ It has been SO long that we have been busy survivin’. Now, I feel like, although still having to be extremely cautious, we have turned the corner and are starting to be busy livin’. We still go to Children’s weekly for 8 gazillion tests and extremely thorough check-ups with Dr. Kohler. I LOVE…

I would like 8000 gallons of wine, 50 days of sleep, 220 Xanax, 10,000 units of Botox, a hair cut and color, and 336 massages. Annnndddd maybe a hot Latin lover. Oye. It’s been a whirlwind. So much has gone on. Good and bad. Lots of growth. Lots of tears. Lots of laughter. Lots of…

Five steps forward, 2 steps back. Or whatever. Whatever…whatever…whatever. This is all bullshit. But it isn’t. I know. I know. I know. We checked in 4 weeks ago today. Seems like a century ago, and I am not the one enduring all the poison. The transformation. The soon to be engraftment. The internal bleeding, the…

I don’t know where to begin. I’ll start with a positive. There is a new song out called Waffle House cut by Jonas Brothers. Yup. And I LOVE IT. I love the actual Waffle House (The Awful House) and this song. It has an upbeat 80’s kind of kick to it. In my head I…

The angels surrounding me yesterday harvesting, the two AMAZING nurses Mary and Ashley, Dr. Curfuffle, Matt and Kimberly, and our GG! SUCCESS! I was able to harvest even MORE than Luke needs. We are about 30 minutes into transplant now and all is going well. AMEN!

Been a long day. I’ve been harvesting since 7 am. Max amount of time I can go is 9PM. Will leave my thingie majigs in arms and report in tomorrow at 8:30 when they get final stem cell count and may need to harvest a bit more tomorrow. Pending that, transplant WILL be tomorrow. not…

A labryinth is a winding path along which a person may walk, crawl, roll, ride, skip, hop, dance, or otherwise move. It is a prayerful movement. It is a journey of a purposeful path that leads to connection, healing, and discovery. I went to the hospital Chapel this evening to sit with God. Pray. Cry.…

The last two days have been rough “er” on our Luke. He woke up yesterday to copious amounts of nausea. It improved throughout the day yesterday and he was able to keep some food down and walk 2 miles. Today has been no bueno. Any liquid or foods that went in, quickly came back up.…

Never say never. I never thought I would be in so many shitholes at the same time. But I also never thought I would have so many exceptional relationships and experiences in my life. I never truly knew the depth of my love for my sons, until I had them. BUT, what I really never…