-
Here We Go
Luke, Ben, Morgan, and I got to the hospital at 11 am today. We went through security and straight to his room. Room 764- one we have not been in before. Tests, more rules to go over, med education (again and again and again) and we are slowly “settling in.” I don’t want to call…
-
UMPH
The last 5-ish weeks have been extra difficult on me for many reasons. It has been full of joy and laughter and memories but also full of random, smack me in the face, anxiety, fear, anger, and sadness. I’m dealing with all of it the best I can and staying focused on getting us to…
-
Tired
People get restless. Dogs, because they are indeed people. Humans. We thrive on progress, and information, even if that information isn’t progressive. I don’t know if that makes any sense. I have not updated in a couple of weeks. I think. I don’t know what day it is most of the time, to be honest.…
-
Blows
I received a card in the mail today from a friend of a friend of a friend. I have never met this person, but God’s timing is shown once again. In that card she sent a prayer: “May today there be peace within you. May you trust God that you are exactly where you are…
-
Not the longest day ever…but turning water into wine now!
But today was very close to the top 10 longest days ever during this battle. Immensely frustrating. Luke woke up with a fever on Wednesday morning. Not a high fever but nonetheless, a fever. With AML, chemo, immunocompromised state, transplant, fucking cancer in general, any kind of fever sounds the alarms. I called BMT, BMT…
-
New Plan!!!
Luke will go to BMT clinic this Friday to hopefully get cleared to check in Monday to start the entire chemo/transplant process. New transplant date, as of now, is March 14. Due to delay,some of my labs are now outside of the transplant window, so I go in tomorrow for more labs and another meeting…
-
Handcuffs- 2008
My mom, our GG, sent this email to me last week and asked me if I wrote it (she had to text me to tell me to check my email). YUP, thats me mom, and this email is from 2008. I read it and laughed and the memories of this day came back, barely. It…
-
False Start
Transplant is being delayed a week. All of Lukes respiratory tests came back negative but Dr. Kohler still wants to wait. The tests don’t include every single possible bacteria or virus and we need him going into this as strong as possible. We 10000000% trust Dr. Kohler so that is what we will do. So,…
-
Waiting
Luke has had a smidge of a sore throat the last few days. We called the on-call doc yesterday to give them a heads up. Today he woke up with a pretty bad sore throat and congestion. We headed to the hospital as planned this morning. They ran a respiratory panel on him and we…
-
Prayers
That amazing sister in law I was telling you about…she put this together for us! Feel free to share! And thank you! https://m.signupgenius.com/#!/showSignUp/10c0f44a5ad2ba1fb6-lukes1 Buckets of prayers! Suz