-
I’m starting to get dizzy
After sitting in the waiting room for 2 1/2 hours waiting for labs, we are heading back home and will try again Friday. Luke’s numbers came in just barely under what his docs want to get a GOOD sample of his marrow to see what it is or isn’t doing. To do the procedure and…
-
Go, stop, go…wait!
I am writing this from the pre-op room. We met with anesthesia, blah blah blah, had numbing cream on his back to prep for needles, anddddddds….. Luke’s counts aren’t high enough to do bone marrow biopsy or lumbar puncture. He has to do his inhaler pentamadine now (lung protection) and we will come back Tuesday…
-
ROCK CHALK LIBERTY BOWL! TODAY!
MUST cheer on the Jayhawks today as they play Arkansas in the Liberty Bowl! Luke is the #KUfightcancer fan for the Liberty Bowl! Brian Hanni, voice of the Kansas Jawhawks will be announcing my sweet Luke! Besides that being pretty dang cool, let’s GO KU FOOTBALL! We had a wonderful Christmas at home! We missed…
-
Rolla Coasta
Now to get to Luke! He’s been battling a bacterial infection since Friday when he felt horrible all day and then spiked a fever early evening. It was supposed to be a special night for him and I had a fun little dinner, BMT family room reserved, movie ready, and decorated. He was missing a…
-
Do you ever feel like you are spinning in circles?
I have had many people ask what a typical day looks like for me. Me, with my sweet boy, on 7 East. ME. I’m not speaking for Luke. I would imagine his day looks quite different, depending on the day. And Luke is the one that is enduring the physical pain, not to mention the…
-
HAMP
Last Tuesday the KU Betas had a bethematch drive and swabbed over 300 people to be a possible bone marrow donor. INCREDIBLE. In a matter of days, word spread like crazy. My sister in law, Kimberly, is now organizing several local events with bethematch.org to find donors. Even if only ONE of the people that…
-
Have you ever showered with a Christmas Tree?
I have. Now, I have. That story is for another time. It’s a good tale for sure. Even Luke’s oncologists said, “perhaps that was a bit overboard Suz.” WHATEVER! I am trying to create a space where I can keep friends updated on Luke’s journey, OUR journey, with his second go-round with AML. FUCK CANCER.…